RARE DISEASE HONG KONG

Survey on Treatment Needs and Quality of Life of XLH Patients

RDHK Approaching the 10th Anniversary

Human Library for Primary & Secondary Schools

Pilot Scheme of Subsidy for Healthcare Needs

Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

"Knowing ILD" webpage

Genetic Counselling Service Support Programme for Fabry & Pompe

Latest EventsView all >>

The LUPUS Revolution 日期：4th May 2024 (Sat) 時間：15:15 - 16:15 地點：The Women's Lounge in Central
「香港杜興氏肌肉營養不良症協會」成立典禮暨講座日期：2024年4月27日（星期六）時間：下午2時30分至5時地點：觀塘海濱道135號宏基資本大廈7樓
SMA病友🐉龍的約會日期：2024年3月23日（星期六）時間：下午3時至6時地點：九龍塘達之路78號生產力大樓1樓演講廳二

Latest NewsView all >>

List of Drugs for Rare Diseases in Hong Kong 2024-04-18 Reference List for rare diseases drugs in Hong Kong（v202404）.
List of Drugs for Rare Cancers in HK 2024-02-16 List of Drugs for Rare Cancers in HK（v202402）.
好「磷」社 XLH病人治療需要及生活質素調查計劃 2024-02-04 誠邀XLH患者和照顧者參與問卷調查。

Event ArchivesView all >>

Rare Disease Public Education Programme ~ Column articles in Oriental Daily 2024-04-07 透過報章專欄向公眾傳遞訊息，喚起各界對罕病議題的關注和支持。
SMA病友🐉龍的約會 2024-03-23 一個集講座、分享交流、歌唱學習、美食、獎品、靚人和靚景於一身的SMA病友聚會。
「罕故事」學校分享計劃 ~ 荃灣官立中學 2024-03-22

Community InformationView all >>

香港耀能協會地區支援服務簡介 2024-05-01 你知道你居住的社區有什麼支援服務嗎?
【🎶心光恩望音樂之旅🎶】 2024-03-31 活動推介踏入初夏，大家有什麼好節目呢?喜歡音樂的朋友，可考慮參加這個由心光恩望學校舉辦的「心光恩望音樂之旅」
Support Programme for Employees with Disabilities 2024-02-26 Employment support Everyone has their own talents. Even people with disabilities can join the workplace and contribute to society as long as they are provided with appropriate supporting platforms.